P-06-1249 Provide a clinical pathway, medical care, and specialists for people with Tourette’s syndrome in Wales
This petition was submitted by Helen Reeves Graham, having collected a total of 10,393 signatures.
Text of Petition:
Tourette’s affects 1 in 100 children. It is not a rare condition. In Wales there is 1 specialist who doesn't see children.
Tourette’s syndrome is a neurological disorder that affects the nervous system and causes tics. Tics are involuntary, sudden, and repetitive movements and sounds. Tourette’s syndrome can be painful and debilitating.
Lots of people are unable to get a diagnosis due to no pathway or get discharged the same day with no ongoing medical care and support. Tourette’s isn't just swearing.
Not getting medical care and support can lead to long term mental health problems. People with Tourette’s can have difficulties with anxiety, sleep, rage and social isolation.
We NEED a proper, clear, clinical pathway and access to specialist provision and medical care for people with Tourette’s syndrome in Wales.
The Committee considered the petition and noted the debate that took place earlier this year and the recent announcement by the Deputy Minister for Social Services to develop a new national improvement programme for neurodevelopmental conditions.
Considering this announcement, the Committee congratulated the petitioner and all those who have campaigned for appropriate services for those with Tourette’s syndrome in Wales and closed the petition.
Full details of the consideration of this petition by the Committee and related documents can be seen on the Meetings tab above.
It was first considered by the Petitions Committee on 25/04/2022.
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Business type: Petition
Reason considered: Senedd Business;
First published: 21/02/2022