P-06-1240 Improve health services for people with epilepsy living in Wales
P-06-1240 Improve health services for people with epilepsy living in Wales
This
petition was submitted by Janet Paterson, having collected a total of 1,334
signatures.
Text of Petition:
We are concerned that the
current services for people with epilepsy living in Wales are not providing
people with the help and support they need.
Epilepsy Action recommends
a caseload of no more than 250 people per Epilepsy Specialist Nurse (ESN), in
order to minimise the effects of their condition and provide the best possible
care. Currently no area in Wales is meeting this recommendation.
There is a lack of ESNs
and waiting times to see neurologists are over 12 months in many areas.
Additional Information:
Increasing the number of
ESNs in all health boards across Wales would help significantly improve access
to services and the support that people with epilepsy receive.
ESNs are vital team
members providing care to people with epilepsy. They work alongside consultant
neurologists and other healthcare professionals to provide essential advice and
support during and, as importantly, in-between appointments.
ESNs are often the first
point of contact for people with epilepsy who require advice or support related
to their condition and their contribution is invaluable. The crucial role of
epilepsy specialist nurses in caring for and supporting people with epilepsy is
set out in Epilepsy Action’s recent ESPENTE report https://www.epilepsy.org.uk/research/espente
In addition to increasing
the number of ESNs, all epilepsy services in Wales need more funding to ensure
that people with epilepsy receive the support and care they need.
Senedd Constituency and Region
- Arfon
- North
Wales
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Business type: Petition
Reason considered: Senedd Business;
Status: For consideration
First published: 17/01/2022