P-04-604 Regarding the closure of Diabetes Patient Reference Groups and the cancellation of meetings of the Diabetic Planning and Delivery Group in Powys.
P-04-604 Regarding the closure of Diabetes Patient Reference Groups and the cancellation of meetings of the Diabetic Planning and Delivery Group in Powys.
We
the undersigned call upon the Minister for Health and Social Services to
require Powys LHB to immediately re-establish the Diabetes Planning and
Delivery Group and the local Diabetes Patient Reference Groups.
The
closure of diabetes Patient Reference Groups in April 2011 and the cancellation
of the statutory Diabetes Planning and Delivery Group (DPDG) in June 2013 denies the patient input
defined in the 'National Service Framework for Diabetes in Wales'(NSF) and the
'Guidance on Involving Adult NHS Service Users and Carers'.
The
closure of the DPDG is in direct contravention of instructions set out in correspondence from the
Minister for Health and Social Services to Chairs of all Local Health Boards
and from the Chief Executive NHS Wales to the Chief Executives of the Local
Health Boards in June 2010. The
correspondence states:-
."Each
DPDG should take responsibility for leading, managing and reporting to the LHB
Board and to the Chief Executive of NHS on progress with the delivery of the
NSF." ......and............."The DPDG will need to ensure effective
engagement with service users and is an integral part of the LHB
structures underpinning the implementation of the CCM (Chronic Conditions
Management) policy agenda." (There
are patient representatives on all the Diabetes Planning and Delivery Groups)
Addiional Information
In
June 2013 the Welsh Assembly Health and Social Care Committee reported on the
outcome of their 'Inquiry into the implementation of the National Service
Framework in Wales and its future direction'. They concluded at Recommendation
5:-
"We
recommend that the forthcoming diabetes delivery plan should ensure that local
Diabetes Planning and Delivery
Groups' relationships with health boards are formalised. Health Boards should
demonstrate how they take account
of DPDG recommendations and fully engage with their work. Arrangements should be
put in place to adopt a national approach
for DPDG's, to include national terms of reference for their operation and a
requirement to meet with each other to share
best practice."
In
October 2013 - 'Together
for Health - A Diabetes Delivery
Plan' was launched by the
Welsh Government. At
Chapter 10. "LOCAL PLANS - LOCAL ACTION" it states:-
........"LHB's
need to achieve full compliance with the Diabetes NSF, and this Diabetes
Delivery Delivery Plan. LHBs
will support their Diabetes
Planning and Delivery Groups (DPDG) to review, update and publish detailed
local diabetes delivery plans. The
LHBs will support and enable the DPDGs to deliver the Diabetes plan, report
progress, publish six monthly updates on their websites and contribute to the
annual all Wales report to be published by the Welsh Government."
Simply
stated there is now no possibility of diabetes patients in Powys to input or
obtain basic information about service planning or delivery. We have been
disenfranchised and denied the stated aim of the Welsh Assembly Government:-
....."to
ensure that people who use NHS services........are genuinely and constructively
involved in all aspects of the service."."
Petitioner : Robert V Wright
First considered by the
Committee:
Number of
Signatures: 40 electronic signatures
Business type: Petition
Reason considered: Senedd Business;
Status: For consideration
First published: 21/10/2014