Meetings
NDM8940 Debate on a Member's Legislative Proposal - a Bill for Owain's Law
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Meeting: 02/07/2025 - Plenary (Item 7)
Debate on a Member's Legislative Proposal - a Bill for Owain's Law
NDM8940 Hefin David
(Caerphilly)
To
propose that the Senedd:
1.
Notes a proposal for a Bill on Owain’s Law, named after Owain James of
Caerphilly, who passed away from a brain tumour in 2024.
2.
Notes that the purpose of this Bill would be to ensure that:
a)
consent for the handling and storage of tumour tissue must be obtained from the
patient, or next of kin where appropriate, prior to surgery;
i)
the consent process shall include a clear written explanation of how excised
tissue will be stored following surgery, and pathological and histological
examination; and
ii)
the consent will outline that all remaining tissue will be owned by the patient
and only consent from the patient, or next of kin where appropriate, can
determine its use;
b)
the minimal amount of excised tumour tissue will be used for pathological and
histological analysis, ensuring diagnostic accuracy;
c)
the remaining excised tumour tissue must be flash or fresh frozen, at -80
degrees centigrade, without any chemicals or preservatives (including saline or
paraffin). Tissue should be stored in multiple aliquots, where possible, to
maximise the future use of tissue for various purposes; and
d)
where emergency situations arise and consent is not possible prior to surgery,
the same protocol for tissue storage must be followed and consent must be
completed within 48 hours.
Supporters
Altaf Hussain (South Wales West)
Janet Finch Saunders (Aberconwy)
Joyce Watson (Mid and West Wales)
Minutes:
The
item started at 16.04
NDM8940 Hefin David (Caerphilly)
To propose that the Senedd:
1. Notes a proposal for a Bill
on Owain’s Law, named after Owain James of Caerphilly, who passed away from a
brain tumour in 2024.
2. Notes that the purpose of
this Bill would be to ensure that:
a) consent for the handling and
storage of tumour tissue must be obtained from the patient, or next of kin
where appropriate, prior to surgery;
i) the consent process shall
include a clear written explanation of how excised tissue will be stored
following surgery, and pathological and histological examination; and
ii) the consent will outline
that all remaining tissue will be owned by the patient and only consent from
the patient, or next of kin where appropriate, can determine its use;
b) the minimal amount of
excised tumour tissue will be used for pathological and histological analysis,
ensuring diagnostic accuracy;
c) the remaining excised tumour
tissue must be flash or fresh frozen, at -80 degrees centigrade, without any
chemicals or preservatives (including saline or paraffin). Tissue should be
stored in multiple aliquots, where possible, to maximise the future use of
tissue for various purposes; and
d) where emergency situations
arise and consent is not possible prior to surgery, the same protocol for
tissue storage must be followed and consent must be completed within 48 hours.
Supporters
Altaf Hussain (South Wales West)
Janet Finch Saunders (Aberconwy)
Joyce Watson (Mid and West Wales)
Natasha Asghar (South Wales East)
Rhys ab Owen (South Wales Central)
The motion was agreed in accordance with Standing Order 12.36.