Cynulliad Cenedlaethol Cymru

National Assembly for Wales

Bil Awtistiaeth (Cymru) drafft

Draft Autism (Wales) Bill

Arolwg Ar-lein DAB117

Online Survey DAB117

Ymateb gan Cyfrannog ar-lein 117

Evidence from Online Participant 117

Please refer to questions in the Online Survey.

Question

Answer

01

Yes

THE DEFINITION SHOULD BE WIDE ENOUGH TO CAPTURE THE COMPLEXITY OF THE CONDITION AND NOT USED TO RESTRICT THOSE BEING DIAGNOSED AS LOCAL AUTHORITIES BEHAVIOUR TOWARDS FAMILIES AND CHILDREN WITH ASD IS NOT ETHICAL. TOO MANY PEOPLE HAVE CONFIRMED TO US THAT THEY ARE BEING DENIED ACCESS TO A DIAGNOSIS OR ARE BEING DEFERRED FROM ANY STATEMENT OF EDUCATIONAL NEEDS BEING PRODUCED.

02

Not sure

-

03

Not sure

WE HAVE VERY LITTLE FAITH IN LA'S (HAVING GONE THROUGH A TRIBUNAL PROCESS TO OBTAIN A SUITABLE STATEMENT FOR OUR SON). AN INDEPENDENT BODY THAT CAN EFFICIENTLY HOLD LA'S TO ACCOUNT IN ANY ACTIONS OR OMMISSIONS THAT UNHELPFUL TO FAMILIES TO THOSE WITH ASD AND THOSE WITH THE CONDITION.

04

Yes

THE LA'S CAN BE SHOWN IN NUMEROUS OCCASSIONS TO HAVE IGNORED GUIDANCE/LEGISLATION. DURING OUR TRIBUNAL IT WAS SHOWN THAT THE RELEVANT LA HAD "MISINFORMED" AND IGNORED THE GUIDANCE SETTING OUT HOW THEY SHOULD BEHAVE

05

NO - BUT CHILDREN WITH STATEMENTS OF EDUCATIONAL NEEDS SHOULD HAVE THOSE NEEDS REMAIN AND SUCH NEEDS SHOULD BE TRANSFERABLE BETWEEN LOCAL AUTHORITIES. YOU SHOULD NOT HAVE TO GO THROUGH A VERY COMPLEX AND STRESSFUL PROCESS JUST BECAUSE YOU MAY MOVE TO ANOT

06

NO - BUT THEY SHOULD SPEAK TO PARENTS ABOUT SOME OF THEIR EXPERIENCES ABOUT DEALING WITH DEALINGS WITH LA'S. OURSELVES AND FAMILIES WE KNOW HAVE HAD TERRIBLE EXPERIENCES

07

NO

08

THERE SHOULD BE TIMEFRAMES PUT IN PLACE FOR DIAGNOSIS FROM REQUEST BY A CONCERNED PARENT

09

No

2 MONTHS IS TOO LONG FROM DIAGNOIS

10

Yes

BUT THERE SHOULD BE AN INDEPENDENT ELEMENT TO THE DIAGNOSIS - EDUCATIONAL PSYCHIATRISTS WORK FOR LA'S AND ARE NOT TO MY MIND TOTALLY INDEPENDENT

11

BOARD CERTIFIED BEHAVIOURAL ANALYST

12

LOCAL AUTHORITY TACTICS AND GENERAL UNHELPFUL ATTITUDE AND A ONE SIZE FITS ALL APPROACH TO CARING FOR OR EDUCATING THOSE WITH ASD

13

Not sure

14

THE INFORMATION SHOULD BE ANONYMOUS

15

Not sure

16

Not sure

17

It should happen all the time.

18

DEPENDS ON WHAT TEH LEGISLATION LOOKS LIKE WHEN IMPLEMENTED IT SHOULD IMPROVE THE LIVES OF CHILDREN AND ADULTS WITH ASD AND GIVE THE FAMILIES ASSISTANCE THAT IS SPECIFIC TO THE NEEDS OF THAT INDIVIDUAL. LOCAL AUTHORITIES SHOULD BE HELD TO ACCOUNT (INCLUDING THOSE INDIVIDUALS WITHIN THE RELEVANT DEPARTMENTS) WITH REAL AND MEANINGFUL SANCTIONS.