Cynulliad Cenedlaethol Cymru |
National Assembly for Wales |
Bil Awtistiaeth (Cymru) drafft |
Draft Autism (Wales) Bill |
Arolwg Ar-lein DAB64 |
Online Survey DAB64 |
Ymateb gan Cyfrannog ar-lein 64 |
Evidence from Online Participant 64 |
Please refer to questions in the Online Survey.
Question |
Answer |
01 |
No Present scientific understanding of Autism is constantly being improved and updated, the precise definition should therefore be determined and maintained by an appropriate professional body. |
02 |
Not sure |
03 |
Yes |
04 |
Not sure |
09 |
Yes |
10 |
Yes |
12 |
Websites that do not meet current accessibility standards. The requirement to use a specific method of contact (eg phone only, or in person only) Failure to accommodate other conditions, such as anxiety disorders and other mental health issues. |
13 |
Yes |
14 |
age gender the age at point of diagnosis what health board/local authority area they are in diagnosis lead time (currently a major problem) how they were diagnosed the job titles of the people who diagnosed them if other tests were done Any related diagno |
15 |
It should be written in the guidance. It would be easier to update the guidance to reflect current challenges in obtaining a diagnosis. |
16 |
Yes It would be reasonable to ask Autism charities for details of people referred for diagnosis or reassessment of their needs and to match this up with outcomes, particularly diagnosis lead times and if the person was given a formal diagnosis. |
17 |
Not sure |
18 |
Personally it would be of great benefit, although I was diagnosed as a child, a great many of my friends and colleagues were not so lucky and would currently be facing waiting times measured in years to simply get a diagnosis. My half brother only recently obtained a diagnosis (in his late 30s) after a 2 year long wait, with multiple cancelled appointments, when he very clearly presents the expected symptoms. My partner has long suspected she may also be on the spectrum, but I cannot in good conscience recommend she go through the stress of obtaining a diagnosis under the current system, as even the best experiences I've heard of from adult women involved prolonged waiting times, not to mention frequent misdiagnosis, and subsequent overmedication. |