Cynulliad Cenedlaethol Cymru

National Assembly for Wales

Bil Awtistiaeth (Cymru) drafft

Draft Autism (Wales) Bill

Arolwg Ar-lein DAB33

Online Survey DAB33

Ymateb gan Cyfrannog ar-lein 33

Evidence from Online Participant 33

Please refer to questions in the Online Survey.

Question

Answer

01

Yes

Why not include the WHO definition? Autistic Spectrum disorder is already such a complex condition you do not need to include other neurodevelopmental disorders as this will dilute the emphasis on ASD. The issue is autism as we currently understand it as this group has been neglected for far too long.

02

No

See above comments

03

Yes

But without proper funding from central government (NHS) and sanctions nothing will change

04

Yes

Absolutely, as the time for 'thinking' is over and urgent action is needed

05

Not sure this is enough time?

06

Definately not enough time unless enough resources are devoted to this

07

The sooner it becomes law the better

08

We should all be following best practice guidance NICE

09

Yes

Need to set timescales but what happens if these are not met?

10

Yes

Not sure why you have not included a learning disability nurse / advanced practitioner in the list of professionals?

11

Learning disability nurse who has developed specialist skills / knowledge in this area. This should also apply to all those professionals  listed above as part of the assessment team.

12

The individual may lack insight into the condition or have good insight and not want to be labelled with ASD and thus may refuse help. In England we have seen services putting up thresholds for people to receive help. Future changes in definitions of ASD and lack of funding / expertise.

13

Yes

14

All of the above but also if they did not get a diagnosis and the reasons behind this

15

It should be written on the Bill.

The Bill would be stronger but could be in both or expanded upon in the guidance?

16

Yes

You need to cast your net wide and far to get all the information

17

It should happen all the time.

It should be a continuous process but a yearly event to highlight issues should be considered

18

Good

19

Get on with it and make it happen