P-04-532 Improving Specialised Neuromuscular Services in Wales.doc – Correspondence from the Petitioner to the Clerking team, 09.11.16

Dear Kayleigh,

Please see below a comment from Muscular Dystrophy UK.

We welcome the involvement of the Health, Social Care and Sport Committee as we press for improvements to neuromuscular services in Wales.

We continue to urge each Health Board across Wales to collaborate and work with the Welsh Neuromuscular Network, with commitments to supporting a more robust and sustainable service for people with muscular dystrophy and neuromuscular conditions across Wales.

This should include:

- the required level of neuromuscular care advisor support
- specialist physiotherapy
- psychology support
- increased dedicated neuromuscular consultant time
- better co-ordination of appointments



Jonathan Kingsley
Policy, Campaigns and Parliamentary Manager